Hello Last Tuesday I watched my dad die at home. He had pancreatic cancer but through lack of linked up care in 4 different hospitals and various inaccurate advice about the pain (eg surgery recovery/pancreatitis) he was never given proper palliative care or support. He died after the most traumatic ....
AliceT 2 years ago
1 reply
1.4K views
Hello I'm very new to all this. I was diagnosed with lung fibrosis and a rare auto immune condition for which there is no cure. In a few short years I've gone from an active full life to struggling to walk or breathe. It's been very hard to get support ....
freshair 2 years ago
1 reply
524 views
Good afternoon everyone.My lovely friend has a life limiting illness which is very rare. CIDP - anyone here have any knowledge of this disease? He lives in Soham and has agreed to let me try and find someone to talk to that isn't family or close. Any suggestions please? xx ....
LizMorgan 2 years ago
1 reply
447 views
Hi everyone, my name is Rachel and I am one of the energy support officers at Marie Curie, we are here to give information and support on the cost of energy bills or for those worried about bills. We can do this through benefit information, giving you details on what ....
RachelESO 2 years ago
0 replies
422 views
Hi my husband has been on palliative chemo for 12 months now for GBM multiforme...but the word terminal has never been mentioned ..iam at my whits end with all his symptoms ..he's lost weight balance is questionable ..he sleeps alot and as for managing bills and paperwork he hasn't got ....
Angie 2 years ago
5 replies
510 views
My mum is at End of Life and is in a nursing home which although do their best for residents they just do not have time to assist mum who is having problems clearing her chest of phlegm and getting into problems breathing which is very distressing for her. When ....
CORAL 2 years ago
1 reply
466 views
My 99 year old mother died three weeks ago. Five days after her death I received the following comment over the phone from my sister-in-law, "I have been surprised at what you've been able to do this week. At least you're not sitting for 24 hours a day wallowing in ....
Hornblower 3 years ago
1 reply
542 views
Hi everybody at the community I just wanted to pop in and share our opening hours with you all over the Christmas Period: The Support Line will be available for the following hours over the Christmas period:10am – 2pm on 24 December.10am – 2pm on 25 December.10am – 4pm on 26 ....
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Brigette 3 years ago
0 replies
382 views
Hi, OH parent has recently started receiving palliative care. The family have been told it could just be weeks and have just discussed do not resuscitate orders. She is mainly bed bound but can stand for short times with assistance. My question is, is it possible (if oncology and or ....
Cazzygirl22 3 years ago
1 reply
500 views
hi my mum passed aweythis thursday 24th february 22 of cancer spent time at st lukes hospice in windsford then came home and eventually passed awey in acare home leavin my dad now behind may sound bit odd but will there be a change in is state pension now my ....
jackie28 3 years ago
3 replies
530 views
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