freshair 1 year ago
1 reply
Hello I'm very new to all this. I was diagnosed with lung fibrosis and a rare auto immune condition for which there is no cure. In a few short years I've gone from an active full life to struggling to walk or breathe. It's been very hard to get support in the community and the calcification and pain in my body is very debilitating. I can't take strong painkillers due to allergies so it's constant pain. I've also been struggling to get physio help, as well as home nursing and help. I'm housebound right now and have found very little understanding from professionals. Though I'm terminal no one seems to be interested in supporting you unless you're end of life. I found this forum and was hoping to try and find ways to access support and also raise the spirits. Thank you