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Hi, I’m new here. My father passed away less than a week ago after six years battling terminal kidney disease and I feel strangely calm. I’m on and off crying and I believe things are starting to click. This calmness brings me guilt in a way and also fear that ....
Hi, I lost my dad 8 weeks ago after diagnosis of cancer 4 months prior. We managed to keep him at home to die. Thanks to Marie Curie. Lately I’ve been feeling happiness guilt. For dad who’s dead but also for mum who has lost her best friend & husband. ....
Hello everyone, I’m Gill and I have just joined so do forgive a few daft questions while I figure out how it all works! I have a rare neurodegenerative disease called Multiple System Atrophy (MSA). It is one the “locked in” diseases, which is to say that, on the way ....
New to this community.I was diagnosed with secondary breast cancer to various bones.Just under 2 years ago.Previously had breast cancer and got 6months after all my treatment finished then it spread.Also suffer from Lupus and other health issues.I will not list them all here.Looking for some support.Doreen. ....
Good morning,With World Book Day upon us we at the Marie Curie Online Community Team thought it might be interesting to have a discussion about what books have helped us on our grieving journey.For me two stand out:You Are Not Alone by Cariad Lloyd- I am a huge fan of ....
Hello everyone, I’d like to introduce myself. My name is Laura and I am a new Online Community Volunteer.My mum (who I was extremely close to) died from terminal cancer in 2014 after a very quick diagnosis and decline. I was 35 with extremely young children and it has, without ....
Hi, my son has recently been diagnosed with a tumor by his spinal cord & the first step is a biopsy (high risk due to location) . The surgeon we just saw was brutal in outlining the possible risks & left no stone unturned leaving my son (28 years old) ....
Hi, My name is Penny and I am an Online Community Volunteer. I have lost several members of my family to terminal illness, in fact from the age of 1 until my 22nd birthday I didn’t have a single year without a relative undergoing treatment for cancer or passing away. ....
Hello, my name is Anke and I am a Marie Curie online community volunteer.I lost my father to a terminal illness in 2023 and am now here to support anyone caring for someone with a terminal illness as well as those who are bereaved. I hope to help others as ....
Hi, My nan has Rhumatoid Arthritis, is extremely frail and bedbound. She has been in a care home for 3 years. This is taking a massive toll on my mum (only child) and I am taking the brunt of my mum's struggling as well as coping with nan's terminal decline ....