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Neurodegenerative diseases

Hello everyone, I’m Gill and I have just joined so do forgive a few daft questions while I figure out how it all works! I have a rare neurodegenerative disease called Multiple System Atrophy (MSA). It is one the “locked in” diseases, which is to say that, on the way ....

GILL 14 days ago

3 replies

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Secondary Breast Cancer

New to this community.I was diagnosed with secondary breast cancer to various bones.Just under 2 years ago.Previously had breast cancer and got 6months after all my treatment finished then it spread.Also suffer from Lupus and other health issues.I will not list them all here.Looking for some support.Doreen. ....

Doreen69 18 days ago

4 replies

131 views
World Book Day- Books about Grief

Good morning,With World Book Day upon us we at the Marie Curie Online Community Team thought it might be interesting to have a discussion about what books have helped us on our grieving journey.For me two stand out:You Are Not Alone by Cariad Lloyd- I am a huge fan of ....

LauraCW 18 days ago

6 replies

430 views
Volunteer introduction- bereavement with young children

Hello everyone, I’d like to introduce myself. My name is Laura and I am a new Online Community Volunteer.My mum (who I was extremely close to) died from terminal cancer in 2014 after a very quick diagnosis and decline. I was 35 with extremely young children and it has, without ....

LauraCW 21 days ago

2 replies

133 views
How to help son with diagnosis & biopsy risk

Hi, my son has recently been diagnosed with a tumor by his spinal cord & the first step is a biopsy (high risk due to location) . The surgeon we just saw was brutal in outlining the possible risks & left no stone unturned leaving my son (28 years old) ....

Ruthmumpositive 2 months ago

5 replies

165 views
Volunteer Introduction

Hi, My name is Penny and I am an Online Community Volunteer. I have lost several members of my family to terminal illness, in fact from the age of 1 until my 22nd birthday I didn’t have a single year without a relative undergoing treatment for cancer or passing away. ....

pennyh 2 months ago

0 replies

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Introduction from a new volunteer with family abroad

Hello, my name is Anke and I am a Marie Curie online community volunteer.I lost my father to a terminal illness in 2023 and am now here to support anyone caring for someone with a terminal illness as well as those who are bereaved. I hope to help others as ....

Daffodil 1 year ago

3 replies

224 views
Anticipatory Grief

Hi, My nan has Rhumatoid Arthritis, is extremely frail and bedbound. She has been in a care home for 3 years. This is taking a massive toll on my mum (only child) and I am taking the brunt of my mum's struggling as well as coping with nan's terminal decline ....

Kbaker87 1 year ago

1 reply

226 views
End of life scary

My sister is feeling worse every day now and today she is at the worst I have seen her. She is coughing so badly and struggling to breathe. I am worried I am gonna lose her soon ....

TBisme 1 year ago

3 replies

237 views
Dealing with grief

Hello, My name is Andrew. i lost my beautiful wife to breast cancer on August 6th 2024. She battled for 13 years.I knew the inevitable would eventually come as she was having palliative care but whilst in hospital she suffered a heart attack which was totally unexpected so i class her ....

Andrwred 1 year ago

1 reply

214 views

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