2726 members | 531 posts

  • User avatar
  • lovetrimmings
  • HannahJG
  • KarDen
  • Sallys

Forgotten Password

Cancel

Login

Not Registered?

Register Step12

Registered?

Register Step12

  • Upload an image for your profile

    Or drag and drop file here

  • Myelodisplastic Syndrome

    Reply

    Goldtooth

    1 reply

    Hello everyone, I can't say I'm pleased to be on this forum.

    I have MDS- RAEB2 which is incurable and will eventually deteriorate to Acute Myloid Leukemia.

    I am stable at the moment and being treated with Azacitidine which will stop working eventually.

    It's a great pity my GP did not pick up on the symptoms, I saw an ent specialist privately as I was getting repeated sinus infections which did not respond to antibiotics.

    He wrote to my GP suggesting an immune problem in January 2012 and my GP ignored this.

    I can't help thinking if I was diagnosed sooner I would not have such a poor prognosis.

  • Delete Post?

  • Clare

      Hi Goldtooth, We are sorry to hear you are going through such a tough time.  If you would feel it would be helpful to speak to somebody, please contact us on our Support Line – 0800 090 2309.

  • Delete Post?