louiser 5 years ago
I'm new here and desparate for help and advice. my mother is 85 and has copd. we are unsure what stage she is at as we just cant get the help we so desperately need to find this out. over the last 5 weeks shes has deteriorated rapidly. She is pain and this isn't being managed well at all. she is now housebound and can only walk a few steps before becoming really breathless. she has no quality of life anymore and after 4 Emergency dept visits via 999 in the last 5 weeks we have still not received any help or medication reviews and she remains in pain. she now has pressure sore too. it is her wish to be on hospice care ( this has always been her wish for many years) I truly believe this is the beginning of the end and she has also said she knows she is dying yet no one will listen.
I am planning to get her gp out tomorrow to see her and to ask to be referred to marie curie (we are in Bradford) the ideal would be at home with visits to clinic if I can get her there but she does not want to die at home.
please can anyone give advise on this situation if we do ask for referral is the gp likely to refuse? I'm at my wits end and so tired.