ngd051111 4 years ago
Hello, My mum was diagnosed with SCLC September last year and was immediately put onto Platinum chemo, which gave her two heart attacks. She then moved on to another chemo to protect her heart which gave her a stroke. Her prognosis went from two years, to one year to less than six months very quickly.
Her cancer is now chemo resistant, she has had a small amount of radiotherapy to stop the tumour pressing on the superior vena cava which takes the deoxygenated blood from the top half of your body and passes it back through the heart to be recycled.
Currently in the 'honeymoon' phase she is up and about, going for lunch and visiting places with her friends, feeling great and looking fantastic. Long may this last. Therefore however she is reluctant to be involved in palliative care, as she feels she is not at that stage yet. For me it would be good for her to meet people, form relationships with them so that when she has a crisis and starts to get unwell its not a stranger coming into the house or looking after her. They would know her idiosyncrasies, and how to take care of her the way she should be. I would also like to meet people as at that point I would be with her most if not all of the time, so its important to me too.
I love her dearly as does my brother (lives in Australia - poor thing) and the rest of the family and her friends. She has a great support network and would not need to go into the hospice as a resident until the very end I hope, but we just don't know.
I am going to suggest she visits and looks at some of the complimentary therapies available as day treatments and hope that we can make an introduction that way and she can attend when she wants to. Her life is still her own and she is fiercely protective of it just now.