billbenn 7 years ago
1 reply
Please does anyone know about prion disease and how to cope with it in practical way?
Support 7 years ago
Hi Billbenn,
I am sorry you haven’t received a
response. It could be that nobody on the Community has the knowledge or
information you are looking for. I have found details for the National CJD
helpline 0800 0853527. Their web site states that they aim to offer practical
and emotional support to individuals and families concerned with all forms of
CJD. So I am hoping they may be able to answer some of your questions and give
you details on how to cope.
If you would like to talk about things in more
detail please call our Free phone Support Line on 0800 090 2309, or drop us a
line via Web Chat: https://www.mariecurie.org.uk/help
Best Wishes
Brigette
Marie Curie Support
Line
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