If you have any questions you would like our Support Line Officers or Information and Support Nurses to answer please post them here and we will respond to them as soon as possible.
Support 6 years ago
I am sorry you haven’t received a response. It could be that nobody on the Community has the knowledge or information you are looking for. I have found details for the National CJD helpline 0800 0853527. Their web site states that they aim to offer practical and emotional support to individuals and families concerned with all forms of CJD. So I am hoping they may be able to answer some of your questions and give you details on how to cope.
Marie Curie Support Line
There are a range of ways we can help you, from clear, useful information about living with a terminal illness to expert nursing care in your home.