Hallo DKKOSK. The symptoms and disability of your husband that you describe are identical to those suffered by my wife Wendy before she died from a glioblastoma aged 54 in 2011. The way you feel is also identical to how I felt. I felt so helpless. Wendy's illness was less than six months from diagnosis. It is a very aggressive and an awful disease.
In retrospect, I regretted not insisting on getting all the support that we needed from the GP, CNS, Macmillan, District Nurses and social services (carers). Make sure that you insist.
I am now a volunteer for Marie Curie and The Brain Tumour Charity. I am aware of other specialist support organisations but they do not cover the whole of the UK - in which part of the country do you live?
Despite the dreadful situation that you find yourself in, each day is precious. Do you know the prognosis?
Let me know if I can help in any way.