Brain tumour

  • Posts: 6
    22/11/2014  11:51

    Nothing prepared me for caring for my wife who was diagnosed with a grade 4 glioblastoma brain tumour. I am happy to share my experience with anyone in a similar unfortunate position.

  • Posts: 1
    28/11/2014  21:27

    Hi, my husband also had a glioblastoma, such a devastating illness. I too would be happy to offer support if needed.

  • Posts: 3
    03/04/2015  05:24

    Hi My 39y old husband has giloblastoma grade 4 He had two surgeries but I was told last week he has months left to live I'm just devastated We have a 3y old daughter I'm struggling to know how to care for him and what are the right decisions to make

  • Posts: 1
    25/09/2015  08:39

    Hi, this is my first post and not sure if I'm in the right place?! I was diagnosed with a GBM4 in 2012 and underwent radio and chemotherapy which was successful in shrinking the tumour and I was in a state of remission for 18 months. Tumour started growing again this year so chemo started again but isn't affecting the tumour. I had surgery in August to Debulk the lesion and I see my oncologist later today to discuss the treatment plan moving forward. I'm 31 and have a 3 year old daughter. I'm finding that I'm struggling emotionally much more with recovery and getting on this time round and am looking for a little real advice from people who are experiencing a similar situation. That seems a bit of a ramble, sorry! Best wishes to all affected Corinne

  • Community Manager - Posts: 120
    25/09/2015  14:47

    Hi Corich, we mainly deal with terminal illnesses on this community so if talking about that would be helpful here is definitely the place to post.


    You can also have a read of our information on Living with a terminal illness in our help pages which cover a wide variety of subjects.


    Also if it would be helpful to talk to someone directly our Support Line is on 0800 090 2309 (Mon-Fri 9am-5pm).


    Hope that helps.


  • Posts: 3
    07/06/2016  22:09

    [quote]Hi My 39y old husband has giloblastoma grade 4 He had two surgeries but I was told last week he has months left to live I'm just devastated We have a 3y old daughter I'm struggling to know how to care for him and what are the right decisions to make [/quote]

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