ginlay500 8 years ago
4 replies
I have been living with cancer for 8 years now with lung mets for the past 4. Was told this week there was nothing else that can be done. Feeling scared and wondered if anyone had any coping techniques ? And support is welcome.
Support 8 years ago
HI Ginlay,
It is natural to feel scared when you are given the news that
nothing else can be done. Everybody responds in their own way when they’re told
they have a terminal illness. Lots of people feel shock and disbelief, even if
they thought they might hear this news. Many people have told us that it is
very helpful to discuss how they are feeling and this can be with family &
friends, your GP, or somebody like ourselves. You can find information on
living with a terminal illness at our website which may help you to understand
your feelings and to help you plan ahead to make the most of the time you have
left: https://www.mariecurie.org.uk/help/terminal-illness
If you would like to talk about things in more detail please
call our Free phone Support Line on 0800 090 2309, or drop us a line via Web
Chat:
https://www.mariecurie.org.uk/help
Best Wishes
Brigette
Marie Curie Support
Line
FlowerOfLife 8 years ago
Dear Brigette,
Hope you're well too O:-)
I just newly registered.
I'm still relatively young, a late uni student. For the past 15 years I've been living with a slowly deteriorating health condition that's now progressing faster, thus getting more and more issues of breathlessness, when changing positions it can increase, especially when I lay down from standing to the bed.
As my body's own coping mechanism, not a good one :-P, I'm now usually going to sleep in two bits, first just sort of half-sitting on my bed and sleeping some like that and then when I wake up, I lay down more on two pillows.
I'm new to this ''stage'' and my nights are completely different now... yak. Before I was a superb sleeper, famous for my every day quick trip to dreamland! :-)
Now going to sleep, emotionally, is a big big issue, stuffed with anxiety and with those creepy feelings, ugh. My bed doesn't feel like a secure nest any more. I'm thinking on one of those triangle shape pillows that create a comfortable angle (also because of my swallowing/drooling issues). I live by myself with no family.
Often I feel that it would be good to chat a little to someone on the phone before I drift off but, the thing is, my go-to-bed time varies.
What's the best way to do it? I'm reading that you close your helpline around 6 Pm.
Who to call after for some de-stressing talk?
I'm quite nervous of calling ANY helpline yet :-DDD so I'm training myself up to it by composing this post.
Me writing this up here is a huge step forward for me! 
I'm thinking that if I'd call a helpline telling that I just would like to chat a little before I go to sleep because the set up of my bed needs to be adjusted due to where I am now health wise... maybe they would just laugh at me :-( We have a student helpline that goes into the night... but I'm not sure if that would be the best way.
I mean, from the outside it doesn't seem like a big issue maybe, pillows and posture of sleeping changing but to me it is a huge issue at the moment, one very practical and very emotional.
I feel quite defeated at the moment, naturally :-P
Thank you for reading! 
I'm looking forward to reading your reply, Brigette.
F.o.L.
HI Ginlay,
It is natural to feel scared when you are given the news that
nothing else can be done. Everybody responds in their own way when they’re told
they have a terminal illness. Lots of people feel shock and disbelief, even if
they thought they might hear this news. Many people have told us that it is
very helpful to discuss how they are feeling and this can be with family &
friends, your GP, or somebody like ourselves. You can find information on
living with a terminal illness at our website which may help you to understand
your feelings and to help you plan ahead to make the most of the time you have
left: https://www.mariecurie.org.uk/help/terminal-illness
If you would like to talk about things in more detail please
call our Free phone Support Line on 0800 090 2309, or drop us a line via Web
Chat:
https://www.mariecurie.org.uk/help
Best Wishes
Brigette
Marie Curie Support
Line
Support 8 years ago
Dear Flower of Life,
It sounds that the
change in your sleep pattern has been very unsettling for you. Have you spoken
to a Health Care Professional about this at all to see if there is anything
that they can suggest to help you? I have no medical training but can
appreciate how frustrating lack of sleep can be. You mention that due to your
condition you suffer from breathlessness have you had a look at the information
on our site: https://www.mariecurie.org.uk/help/terminal-illness/manage-symptoms/breathlessness.
Mind have some very
good fact sheets on Sleep problems which you can find here: http://www.mind.org.uk/information-support/types-of-mental-health-problems/sleep-problems/#.WCM1xfnIZsc
and tips on
helping sleep here: http://www.mind.org.uk/information-support/tips-for-everyday-living/sleep-problems-tips/#.WCM19PnIZsc.
If you are feeling
anxious and find talking helps to settle you then reaching out to a Helpline is
a great idea. If the student Helpline is open when you need them then I would
suggest trying them. Another option which may offer you support is SANEline they
are open from 6pm-11pm daily on 0300 304 7000.
If you would like to talk about things in more
detail please call our Free phone Support Line on 0800 090 2309, or drop us a
line via Web Chat: https://www.mariecurie.org.uk/help
Best Wishes
Brigette
Marie Curie Support Line
FlowerOfLife 8 years ago
Dear Flower of Life,
It sounds that the
change in your sleep pattern has been very unsettling for you. Have you spoken
to a Health Care Professional about this at all to see if there is anything
that they can suggest to help you? I have no medical training but can
appreciate how frustrating lack of sleep can be. You mention that due to your
condition you suffer from breathlessness have you had a look at the information
on our site: https://www.mariecurie.org.uk/help/terminal-illness/manage-symptoms/breathlessness.
Mind have some very
good fact sheets on Sleep problems which you can find here: http://www.mind.org.uk/information-support/types-of-mental-health-problems/sleep-problems/#.WCM1xfnIZsc
and tips on
helping sleep here: http://www.mind.org.uk/information-support/tips-for-everyday-living/sleep-problems-tips/#.WCM19PnIZsc.
If you are feeling
anxious and find talking helps to settle you then reaching out to a Helpline is
a great idea. If the student Helpline is open when you need them then I would
suggest trying them. Another option which may offer you support is SANEline they
are open from 6pm-11pm daily on 0300 304 7000.
If you would like to talk about things in more
detail please call our Free phone Support Line on 0800 090 2309, or drop us a
line via Web Chat: https://www.mariecurie.org.uk/help
Best Wishes
Brigette
Marie Curie Support Line
[/quote]
If you have any questions you would like our Support Line Officers or Information and Support Nurses to answer please post them here and we will respond to them as soon as possible.
New to the community? Say hello and ask any questions you've got about how to use the community.
There are a range of ways we can help you, from clear, useful information about living with a terminal illness to expert nursing care in your home.
