PPC stage 4

  • Posts: 2
    19/09/2017  16:55

    mum was diagnosed 12 months ago and prognosis 15 months - getting progressively worse and wishses to be cared for at home

    the macmillan nurse trying so hard to get pain meds right but most of time mum hallucinating confused falling- needs someone with herday and nights but boy is she stubborn ! I love her so much we all do - she is 80 its so sad seeingher like this

    anyone else know much about this primary peritoneal cancer- primary is bowel but its in the bladder and rectum around it and inside it -s he is on oxycodone pregab amitryptilline ans loads of other meds

  • Posts: 112
    25/09/2017  11:34

    Hello Andreas,

     

    I am sorry to read about your experiences with your mum whom you love so much. Caring for a loved one can be both rewarding and challenging, there is further information here www.mariecurie.org.uk/help/support/being-there that you may find useful.

     

    Understandably you want guidance about her specific condition and medication; I am pleased to read your mum has the support of a Macmillan Nurse. As well as talking to her, you may also wish to speak www.cancerresearchuk.org that has nurses on their support line

     

    If you would like to talk about how you are feeling in more detail please call our Free phone Support Line on 0800 090 2309, or drop us a line via Web Chat:

    https://www.mariecurie.org.uk/help

     

    Best Wishes

     

    Claire

    Marie Curie Support Line

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