Vatb95 1 month ago
Edited by Vatb95 1 month ago
My mum has recently been put on an end of life pathway for suspected bowel cancer. There is no way of ever knowing as she is far too unwell with a range of complex health conditions and chair bound.. to have the tests/biopsy, and even if she did the outcome/treatment would be the same; to treat her symptoms and keep her as comfortable as possible..
The last couple of months we have seen an increase in pain and use of morphine. She is on 24/7 oxygen which we're learning means morphine works differently for her. This weekend we had paramedics out for suspected sepsis but once morphine was given she settled. She's being treated for an infection but now has been placed on a pathway and we have everything at home now and the team to contact, but now we're wondering is this an infection or will we see more days like this?
I work 4 days a week, with a toddler in childcare, and partner that works abroad a lot. I'm exhausted with this push-pull of every time Mum has a bad night that turns into a bad weekend - we're genuinely concerned this is the end.
How long does this go on for? Is this end of life? There's so many questions that can't be answered and no clear pathway or support for us. Does everyone feel this way? I'm exhausted already. We just lost her husband / my dad a few months ago unexpectedly - I'm dreading she will pass unexpectedly too and we'll never be prepared for it.