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  • Palliative Care at Home

    Reply

    Carly51

    1 reply

    Hi, I've just joined this community. Thank you. My Mum is caring for my Dad who is at the end of life stage. He is at home and it's at the stage where the nursing care needed is more than Mum can give. 


    Mum heard about Hospice at Home and called the Marie Curie helpline to ask about it but the enquiry was passed along and became confused so she didn't manage to get any information about it. 


    She has talked to one of the Community Nurses who comes in (they advise medication but are not hands on) and has been told that Hospice at Home care through Marie Curie is a pilot scheme and not available in her area. 


    I was hoping someone could point me in the right direction so I could double check this and find out more please? 


    She has had a Marie Curie nurse come in to sit with Dad a couple of times but this has just been respite care while she attends her own medical appointments. 


    Thank you in advance for any help you can give. 

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  • David

    Hi Carly51,


    Welcome to the Marie Curie Online Community. We’re sorry to hear about your dad’s condition and we understand there is uncertainty about whether Marie Curie nurses can help with hospice nursing care at home where your parents live.


    Marie Curie works in most parts of the UK to provide nursing care at home for terminally ill people. We work in partnership with the NHS and the nursing service we provide in each area is guided by local NHS commissioning. In some areas they choose to work with organisations other than Marie Curie for this kind of care. Your dad’s district nursing team should be able to explain which services for end-of-life care are available and make referrals when appropriate.


    It may help to contact our Support Line yourself to discuss the specific details of your parents situation. You’re welcome get in touch. You’ll also find information about Marie Curie nurses online at:


    Our Support Line team can be contacted by calling Freephone 0800 090 2309 or through webchat at www.mariecurie.org.uk


    Take care,


    David – Support Line Officer


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