If you have any questions you would like our Support Line Officers or Information and Support Nurses to answer please post them here and we will respond to them as soon as possible.
michelle115 1 year ago
hi im new here too
just heard some not to good news, my sister has cancer her condition is declining as you can imagine this is truly one of the hardest thing i ever been through. im sorry that any one of us have to deal with this pain.i know you all understand my pain and how hard this is right now.
Clare 1 year ago
We’re sorry to hear about all that your sister and you as a family are going through. Knowing a loved one’s condition is declining can be such difficult news to cope with and can bring with it powerful emotions that may feel overwhelming at times.
Some people tell us that talking about how they are feeling has been helpful and we hope that others here on the community will share their experiences with you. You are also more than welcome to talk to us on the Support Line, either here on the community, through the online chat service or by calling us on Freephone 0800 090 2309.
Claire – Support Line Officer
SandraF 1 year ago
HI my name is Sandra. My dad has end stage heart failure. He is a very stubborn man and refuses all help until we hit a crisis when circumstances take over. His wishes are to remain at home until the end but unfortunately a knee injury/gout? has resulted in a hospital stay. I feel totally devastated by the situation but also frustrated by the fact that he continues to refuse help including a desperately needed catheter. 3 nurses took all day to get this resolved resulting in immediate relief and am improved blood pressure.
Brigette 1 year ago
Hi Sandra, I am sorry to read about your dad and the difficult circumstances you are facing. Can I ask do you feel that Dad has mental capacity to understand the decisions he is making? Is dad still in the hospital? Before somebody is discharged there will normally be a multi-disciplinary meeting to look to see what needs to be put in place for a safe discharge. This would be an opportunity for you to discuss your worries and concerns with them. If you would like to discuss this further please do feel free to call us on the Support Line- Freephone 0800 090 2309.
If anybody reading this can share any information or insight about how they coped in a similar situation please do so.
Brigette- Marie Curie Support Line
There are a range of ways we can help you, from clear, useful information about living with a terminal illness to expert nursing care in your home.