alison 2 months ago
Hello, I’m new here. My elderly mother has recently been diagnosed with an aggressive glioblastoma. She lives on her own and I live about 100 miles away and has always been fiercely independent; I’m staying with her four days out of seven and trying to balance caring for her with working full time. She has support from a MacMillan nurse, plus carers. The tumour is affecting her memory, both short and long term. I have tried writing key instructions down and organising her belongings so that the things she needs are always in the same place. But today she rang me at work because she couldn’t find a couple of things (which she then found!), but more upsetting Lu she wanted contact details for my dad, who died 15 years ago. I didn’t really know what to say and fobbed her off with a vague reply saying I would see if I could find a contact for him, but that he might not reply. I have let our MacMillan nurse know, but I was wondering if anyone else had any experience of this and what to say or do? Thank you.