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    Hello, I’m new here. My elderly mother has recently been diagnosed with an aggressive glioblastoma. She lives on her own and I live about 100 miles away and has always been fiercely independent; I’m staying with her four days out of seven and trying to balance caring for her with working full time. She has support from a MacMillan nurse, plus carers. The tumour is affecting her memory, both short and long term. I have tried writing key instructions down and organising her belongings so that the things she needs are always in the same place. But today she rang me at work because she couldn’t find a couple of things (which she then found!), but more upsetting Lu she wanted contact details for my dad, who died 15 years ago. I didn’t really know what to say and fobbed her off with a vague reply saying I would see if I could find a contact for him, but that he might not reply. I have let our MacMillan nurse know, but I was wondering if anyone else had any experience of this and what to say or do? Thank you.

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  • Clare

    Hello Alison,

    Welcome to the Marie Curie community. 

    We’re sorry to hear about your mum’s diagnosis and how understandably upsetting it was to hear her ask about your dad. We hope that others on here will be able to share their own experiences with you and also wanted to let you know that the Support Line is here for you with a listening ear. Our Support Line nurse may be able to share some information regarding some of the symptoms mum is experiencing. We can be contacted on Freephone 0800 090 2309 and via online chat -

    Take care,

    Clare – Support Line Officer

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