3 months ago
Welcome to the Marie Curie community and we are sorry to hear
about your husband’s condition. It sounds like it has been a difficult time in
recent months with these hospital admissions and you’re particularly concerned about
getting the right care at home when he is discharged from hospital again.
Hopefully better support with pain management and any other
symptoms he is struggling with will be put in place and you can speak with the
hospital team if you are worried. Palliative care is about helping people live
as well as possible with a terminal condition – for those whose symptoms are
hard to manage (especially issues like pain), they may be admitted to a hospice
for a short stay or possibly referred to a community palliative care team who
help people at home.
If you want to know more about the kind of help available,
we have content on our website about getting nursing care at home:
There is also our booklet Being Cared for at Home
which is available to read online or order for free through the website:
Help with day-to-day care needs is usually offered by professional
carers organised by the hospital discharge team or through social services. You
can speak with them and let them know if you’re worried it won’t be enough to
meet your needs.
Perhaps there are others who have faced similar concerns
organising care and will be able to share their thoughts or experiences on the
Marie Curie Online Community?
If it would help to talk about your situation in more detail
with one of the Support Line team, we are also here for information as well as
emotional support. You can speak with us by calling Freephone 0800 090 2309, or
chat online through webchat at www.mariecurie.org.uk.
David – Support Line Officer