MND end of life care

  • Posts: 2
    15/06/2018  08:39

    My uncle has discharged himself against the hospitals wishes to die at home.. they have given us thickener but have told us he can’t be fed or give liquid and that we have to let him starve to death??? He knows this but wants water??? Can we give him this with the thickener??? The hospital won’t help us as he has discharged himself...please help

  • Posts: 229
    15/06/2018  10:04




    Hello Portia1966


     


    I am sorry to read about your uncle’s condition and all that you have been experiencing.


    Here on our Support Line unfortunately we aren’t medically trained so as you have concerns we would suggest for you to get in touch with a health care professional such as his GP if you haven’t already done so. If you need medical support outside of GP opening hours, we have information about accessing services here: https://www.mariecurie.org.uk/help/support/terminal-illness/care-needs/out-of-hours-care


    Many people tell us that they find it helpful to talk to someone about how they are feeling. If you or your uncle ever need a listening ear, please call our Freephone Support Line on 0800 090 2309, or you can get in touch with us through our web chat function here: https://www.mariecurie.org.uk/help/support/marie-curie-support-line  

    Best wishes


    Ross


    Marie Curie Support Line


     



  • Posts: 2
    19/06/2018  07:54

    Thank you for your reply...my uncle passed away early this morning...

  • Posts: 229
    19/06/2018  10:32

    Hello Portia1966

     

    I’m so sorry to read of the recent loss of your Uncle.

     

    If you need to talk, we are here for you on the Support Line. You can get in touch with us by calling Freephone 0800 090 2309 or through our online web chat function using the weblink above.

     

    Our opening hours are Monday to Friday 8am to 6pm and on a Saturday 11am to 5pm.

     

    Take care,

     

    Sam

     

    Marie Curie Support Line 


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