MND end of life care

Portia1966 6 years ago

3 replies

My uncle has discharged himself against the hospitals wishes to die at home.. they have given us thickener but have told us he can’t be fed or give liquid and that we have to let him starve to death??? He knows this but wants water??? Can we give him this with the thickener??? The hospital won’t help us as he has discharged himself...please help

Support 6 years ago

Hello Portia1966

I am sorry to read about your uncle’s condition and all that you have been experiencing.

Here on our Support Line unfortunately we aren’t medically trained so as you have concerns we would suggest for you to get in touch with a health care professional such as his GP if you haven’t already done so. If you need medical support outside of GP opening hours, we have information about accessing services here: https://www.mariecurie.org.uk/help/support/terminal-illness/care-needs/out-of-hours-care

Best wishes

Marie Curie Support Line

Portia1966 6 years ago

Thank you for your reply...my uncle passed away early this morning...

Support 6 years ago

Hello Portia1966

I’m so sorry to read of the recent loss of your Uncle.

If you need to talk, we are here for you on the Support Line. You can get in touch with us by calling Freephone 0800 090 2309 or through our online web chat function using the weblink above.

Our opening hours are Monday to Friday 8am to 6pm and on a Saturday 11am to 5pm.

Take care,

Sam

Marie Curie Support Line