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  • A message to carers

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    Khandarohi

    1 reply

    Edited by Khandarohi 16 hours ago

    This thread is messages from people with terminal cancer explaining what their carers did that was helpful & what wasnt. Please write your messages below

    I got diagnosed with cancer in my lymph nodes where it spreads to the brains, bones, lungs, and liver.

    I felt I had two choices. Prepare for death or pretend Im not going to die from this.

    I have chosen to prepare for death & people are telling me that I am CHOOSING to die and that I do not value life because I could extend my life and am choosing not to. I also hear rallying cries that Im exaggerating and maybe the doctors can cure me. Then asking why I dont try.

    This is my answer.

    The two options look like this:
    1) I really enjoy the time I have left and come to terms with death so its not traumatic.
    2) I Spend a few years subjecting myself to all sorts of horrible experiences, getting body parts cut out being thrown around by doctors nurses in chaotic hospitals getting angry and grasping if Im neglected, being stabbed with needles, maybe tubes rammed down my throat who knows what! Maybe ending up in a bed with tube down my throat and a relative who cant let go and leaves me suspended like that with a body racked with pain........who knows.

    I am choosing option 1
    Im 2 weeks into option 1 and already my body is filled with euphoria & confidence about dying and being in control of my palliative plan. I have filled my home with flowers, celestial flowers. I feel masses of bliss in my body & am having a deep spiritual awakening. I feel so alive & everything looks so beautiful. I have confidence because I have seen the local hospice and met the care teams that do palliative care from home. 

    I may live a long time but whether I live a long time or not, I will be happy and at peace and able to let go.

    People who are dying need to be able to let go. Yet there is a constant request for them to hold on. This makes it so they go on and on trying to prolong their life and their illness becomes much more advanced. For example, if I suppress my cancer it will rise up again more extensively spread...so when I die it will be far more painful & traumatic.

    If people take option 2 there can be a denial that death is going to happen until a very late stage. Then, you have missed your chance to say goodbyes & have special conversations, because the dying person is so weak or in so much pain. 

    With option 1 you can just focus on the spiritual journey of your relationships with your loved ones reaching an incredible climax of deep love. It only took me 2 weeks to overcome my fear. Now I am so happy. Im literally going down the street and people are like....what the hell is she on!!?? Im inviting people to my life celebration and preparing special gifts they will find after Im gone etc.

    I have even put special treasure in my home so the next person who moves in will find it. Im enjoying this journey so much. Instead of having my breast hacked off and all my lymph nodes removed only for it to come back much more extensive over and over until its everywhere.

    I am pushing away the people who say why not try this herb or why dont you do the treatments.

    I hope this explanation helps people understand why people with terminal illness want to speed it up and refuse treatments that are not palliative.

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  • Khandarohi

    Another thing that is happening is my friends are trying to arrange experiences and outings to take my mind off the situation.

    This is not what I need and its not working for me. Let me explain why.

    I have got myself into a spiritual zone where I have a mental state that is ready for death. Trying to erase my thoughts or get me to stop thinking...removes that protection. The distraction technique exposes me to suffering. It doesnt protect me at all. Nor does telling me not to think about it.

    I want to talk about death. I want to say goodbye. I want to let go. So when people try to mentor me to not think about death in order to have a nice day or break, its like removing my armour to go for a swim.

    I feel like I cant talk about death because it will upset my loved ones and their advice to fight & distract myself is ..they have no idea what its like so they are just speculating about what might help. Its best to follow the dying persons lead. Dont try to be an expert or advisor unless they ask you to.xxxx

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