Jackson 1 year ago
1 reply
I've just joined wanted to introduce myself I'm 58years and suffer with incurable liver disease unfortunately no treatment mine is very rare so don't know how to treat me I get very lonely although married to a wonderful husband who is my rock it's very difficult to except my condition and have no one to talk to as I'm the only one in country with this condition. Does anyone else feel like this with there illness.
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Hannah11 1 year ago
Hi Jackson,
Welcome to the Online Community.
I'm sorry to hear about your diagnosis and that you were unable to have treatment due to the rarity of your condition.
Although we can have family and friends around who are supportive it can still feel isolating when it comes to having someone to talk to. Our loved ones can try their best but sometimes it can feel hard to talk to them freely about our emotions or feelings.
We hope that others who may be in a similar position will read your post and be able to offer you some kindness and support.
Our Support Line is always here for you on Freephone
Take care for now,
Hannah - Support Line Officer.
If you have any questions you would like our Support Line Officers or Information and Support Nurses to answer please post them here and we will respond to them as soon as possible.
New to the community? Say hello and ask any questions you've got about how to use the community.
There are a range of ways we can help you, from clear, useful information about living with a terminal illness to expert nursing care in your home.
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