Newbie

Hi,I am new to this group and just wanted to say hello.

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Hello Flowers. Welcome to our Marie Curie Community.

We hope you will feel able to share as much or as little as you like and that other people will be able to share their experiences with you.

Our Support Line is also here for a listening ear and for information. You can

speak with us online at www.mariecurie.org.uk or by phone on Freephone

0800 090 2309

Best wishes,

Alexia-Support Line Officer

Hello flowers New to this chat too . Not too sure what I’m really doingx

That’s two of us. x

What brings you on this chat x

I guess we’re all just on to share our woes and get some comfort nd understanding from people in similar circumstances. I lost my 26 Yr old daughter to cancer in January and I’m at a loss, I dint know whether I’m coming or going . Half the time I don’t actually know what day it is x

Hi,I am so sorry to hear about your loss xx

Losing a child must be devastating for you and such a waste of a young lady.

My family and I are day by day losing my husband ,a dad to two and grandfather.

Like you dealing with cancer is awful.Some days I can focus but mostly I just function x

I remember those days of anxiety and exhaustion wondering if today was the day . My whole life was taken up with my daughter and I wouldn’t have had it any other way . And ti be honest absolutely nothing can prepare you for it when it eventually happens . Existing is a good way to describe it but now I don’t even want to exist . I wouldn’t act on that but I wake up and think …not another day ,I dint want to do this . I’m sorry I’m probably making you feel worse but I’m just being honest. Here to chat if you feel like it ,any time :heart:

Being honest is extremely important. At the moment for us we take a day at a time and focussing on what we need to do each day and spending what time we have left. Thinking about life afterwards at the moment is something I do occasionally mainly because financially, dealing with the house,alongside keeping people informed keeps me going if you see what I mean.I

Tell me about your daughter if it helps, like you here if you need a chat anytime xx

My daughter is called jade and she was a unique young woman . Her motto was “know your worth” and believed in making the most of your life and being the best version of yourself and had the kindness heart ,made time for everyone even when she was unwell and everyone is devastated ,even the doctor in the hospice was crying even though she was only there for 4 days . She had battled cancer 4 times from age of 15 until they couldn’t fix her anymore . She was my best friend and I miss her every second of every day . How long has your husband been ill x

Hi NewGirl1,

Welcome to the Marie Curie Community and we’re sorry to hear about the loss of your daughter. It’s understandable if this feels disorientating and the grief of a parent can be so difficult. Our community is your safe space to share whatever you feel comfortable sharing and a way to connect with others who’ve been through similar experiences for mutual support.

Our Support Line team are also here for you if need to talk or would like information about coping with grief.

Take care,

David – Support Line Officer

We took one day at a time too and TRIED to smile every day and not think of next day but sometimes it just consumes you ,the sadness ,the tears :heart:

Hi, what a beautiful name she sounds like a fantastic young lady.

Being kind to our fellow person is a precious ability .She sounds like a strong minded lady you must be very proud of her.

My husband was diagnosed in January with hope that treatment would extend his life but now we are preparing for him to come home in days with palliative care package. Treatment just was not enough as it is quite aggressive . I spend days quite calm but I think I am hiding it.

I’m so aorry about your husband . My job is in the care sector and I know how it affects families from that point of view. I’m sure the carers will be fantastic and will care for him with love and respect . It’s hard when you have it 24hrs a day . I stayed with jade for 4 days and 3 nights ,holding her hand and was involved in her care in those last days as much as I could . If you want to help in your husband’s care at home then do that but remember if it’s too much let the carers do the tough stuff ,don’t feel guilty . You need to be strong and rested to get through this tough time x