# Welcome and community guide **URL:** https://community.mariecurie.org.uk/c/welcome-and-community-guide-1/12.md?page=1 [Latest](https://community.mariecurie.org.uk/latest.md) · [Categories](https://community.mariecurie.org.uk/categories.md) **Page:** 2 --- ## [We’re here for you this Father’s Day](https://community.mariecurie.org.uk/t/we-re-here-for-you-this-father-s-day/1858)
**Author:** [@joanne24](https://community.mariecurie.org.uk/u/joanne24)\ **Replies:** 0\ **Last updated:** [15 June 2025 09:03 UTC](https://community.mariecurie.org.uk/t/we-re-here-for-you-this-father-s-day/1858 "2025-06-15T09:03:16Z")
We’re thinking of dads everywhere today - from the dads who care for us, to the dads we’ve lost. :yellow\_heart: If you need support, we’re here for you. Contact our Support Line for free on 0800 090 2309 or visit Marie … --- ## [Worried about local services](https://community.mariecurie.org.uk/t/worried-about-local-services/1855)
**Author:** [@ElaineD1969](https://community.mariecurie.org.uk/u/ElaineD1969)\ **Replies:** 1\ **Last updated:** [9 June 2025 15:00 UTC](https://community.mariecurie.org.uk/t/worried-about-local-services/1855 "2025-06-09T15:00:29Z")
Hello, I am Elaine, and my Mum, Isabella is 89 and on palliative care. Mum has been on palliative care for a year and a half now, she has been in and out of hospital since she was 10 orthopedically but the past five yea… --- ## [Happiness Guilt](https://community.mariecurie.org.uk/t/happiness-guilt/1848)
**Author:** [@GemmaEnjoyLife](https://community.mariecurie.org.uk/u/GemmaEnjoyLife)\ **Replies:** 4\ **Last updated:** [31 May 2025 09:58 UTC](https://community.mariecurie.org.uk/t/happiness-guilt/1848 "2025-05-31T09:58:37Z")
Hi, I lost my dad 8 weeks ago after diagnosis of cancer 4 months prior. We managed to keep him at home to die. Thanks to Marie Curie. Lately I’ve been feeling happiness guilt. For dad who’s dead but also for mum who has … --- ## [Grief confusion after losing my father a few days ago](https://community.mariecurie.org.uk/t/grief-confusion-after-losing-my-father-a-few-days-ago/1849)
**Author:** [@thepaintingwitch](https://community.mariecurie.org.uk/u/thepaintingwitch)\ **Replies:** 16\ **Last updated:** [14 May 2025 16:01 UTC](https://community.mariecurie.org.uk/t/grief-confusion-after-losing-my-father-a-few-days-ago/1849 "2025-05-14T16:01:42Z")
Hi, I’m new here. My father passed away less than a week ago after six years battling terminal kidney disease and I feel strangely calm. I’m on and off crying and I believe things are starting to click. This calmness bri… --- ## [Disbelieve](https://community.mariecurie.org.uk/t/disbelieve/1852)
**Author:** [@AVRYL](https://community.mariecurie.org.uk/u/AVRYL)\ **Replies:** 2\ **Last updated:** [9 May 2025 09:37 UTC](https://community.mariecurie.org.uk/t/disbelieve/1852 "2025-05-09T09:37:53Z")
My Husband passed away on the 1st April 2025 at the Marie Curie Hospice after a very short battle with Cancer , just Diagnosed on the 24th January 2025 with an aggressive stage 4 cancer of unknown primary , he became v… --- ## [Fundraising in memory of my husband](https://community.mariecurie.org.uk/t/fundraising-in-memory-of-my-husband/1847)
**Author:** [@Burnsie66](https://community.mariecurie.org.uk/u/Burnsie66)\ **Replies:** 1\ **Last updated:** [17 April 2025 14:33 UTC](https://community.mariecurie.org.uk/t/fundraising-in-memory-of-my-husband/1847 "2025-04-17T14:33:14Z")
My husband has died after 50 wonderful years of marriage, now, after 9 months, I am just beginning to see through the pain and recall all the happiness we shared together. I have started to sort his clothes to donate to … --- ## [Help](https://community.mariecurie.org.uk/t/help/1843)
**Author:** [@Stephb](https://community.mariecurie.org.uk/u/Stephb)\ **Replies:** 3\ **Last updated:** [28 March 2025 13:42 UTC](https://community.mariecurie.org.uk/t/help/1843 "2025-03-28T13:42:20Z")
I don’t know how this works. I’m wanting to chat with somebody as I’m alone at the moment. My husband is in hospital and is moving to hospice care on Monday if he is still with us. I have MS and my husband is my career. … --- ## [Neurodegenerative diseases](https://community.mariecurie.org.uk/t/neurodegenerative-diseases/1680)
**Author:** [@GILL](https://community.mariecurie.org.uk/u/GILL)\ **Replies:** 3\ **Last updated:** [11 March 2025 09:28 UTC](https://community.mariecurie.org.uk/t/neurodegenerative-diseases/1680 "2025-03-11T09:28:00Z")
Hello everyone, I’m Gill and I have just joined so do forgive a few daft questions while I figure out how it all works! I have a rare neurodegenerative disease called Multiple System Atrophy (MSA). It is one the “locked … --- ## [Secondary Breast Cancer](https://community.mariecurie.org.uk/t/secondary-breast-cancer/1662)
**Author:** [@Doreen69](https://community.mariecurie.org.uk/u/Doreen69)\ **Replies:** 4\ **Last updated:** [7 March 2025 12:42 UTC](https://community.mariecurie.org.uk/t/secondary-breast-cancer/1662 "2025-03-07T12:42:03Z")
New to this community. I was diagnosed with secondary breast cancer to various bones. Just under 2 years ago. Previously had breast cancer and got 6months after all my treatment finished then it spread. Also suffer f… --- ## [World Book Day- Books about Grief](https://community.mariecurie.org.uk/t/world-book-day-books-about-grief/1681)
**Author:** [@LauraCW](https://community.mariecurie.org.uk/u/LauraCW)\ **Replies:** 6\ **Last updated:** [7 March 2025 12:39 UTC](https://community.mariecurie.org.uk/t/world-book-day-books-about-grief/1681 "2025-03-07T12:39:22Z")
Good morning, With World Book Day upon us we at the Marie Curie Online Community Team thought it might be interesting to have a discussion about what books have helped us on our grieving journey. For me two stand out: … --- ## [Volunteer introduction- bereavement with young children](https://community.mariecurie.org.uk/t/volunteer-introduction-bereavement-with-young-children/1507)
**Author:** [@LauraCW](https://community.mariecurie.org.uk/u/LauraCW)\ **Replies:** 2\ **Last updated:** [4 March 2025 12:20 UTC](https://community.mariecurie.org.uk/t/volunteer-introduction-bereavement-with-young-children/1507 "2025-03-04T12:20:18Z")
Hello everyone, I’d like to introduce myself. My name is Laura and I am a new Online Community Volunteer. My mum (who I was extremely close to) died from terminal cancer in 2014 after a very quick diagnosis and decline.… --- ## [How to help son with diagnosis & biopsy risk](https://community.mariecurie.org.uk/t/how-to-help-son-with-diagnosis-biopsy-risk/1599)
**Author:** [@Ruthmumpositive](https://community.mariecurie.org.uk/u/Ruthmumpositive)\ **Replies:** 5\ **Last updated:** [31 January 2025 12:38 UTC](https://community.mariecurie.org.uk/t/how-to-help-son-with-diagnosis-biopsy-risk/1599 "2025-01-31T12:38:11Z")
Hi, my son has recently been diagnosed with a tumor by his spinal cord & the first step is a biopsy (high risk due to location) . The surgeon we just saw was brutal in outlining the possible risks & left no stone unturne… --- ## [Volunteer Introduction](https://community.mariecurie.org.uk/t/volunteer-introduction/1504)
**Author:** [@pennyh](https://community.mariecurie.org.uk/u/pennyh)\ **Replies:** 0\ **Last updated:** [20 January 2025 08:27 UTC](https://community.mariecurie.org.uk/t/volunteer-introduction/1504 "2025-01-20T08:27:24Z")
Hi, My name is Penny and I am an Online Community Volunteer. I have lost several members of my family to terminal illness, in fact from the age of 1 until my 22nd birthday I didn’t have a single year without a relative… --- ## [Introduction from a new volunteer with family abroad](https://community.mariecurie.org.uk/t/introduction-from-a-new-volunteer-with-family-abroad/1380)
**Author:** [@Daffodil](https://community.mariecurie.org.uk/u/Daffodil)\ **Replies:** 3\ **Last updated:** [20 December 2024 09:33 UTC](https://community.mariecurie.org.uk/t/introduction-from-a-new-volunteer-with-family-abroad/1380 "2024-12-20T09:33:14Z")
Hello, my name is Anke and I am a Marie Curie online community volunteer. I lost my father to a terminal illness in 2023 and am now here to support anyone caring for someone with a terminal illness as well as those who … --- ## [Anticipatory Grief](https://community.mariecurie.org.uk/t/anticipatory-grief/979)
**Author:** [@Kbaker87](https://community.mariecurie.org.uk/u/Kbaker87)\ **Replies:** 1\ **Last updated:** [21 November 2024 12:51 UTC](https://community.mariecurie.org.uk/t/anticipatory-grief/979 "2024-11-21T12:51:25Z")
Hi, My nan has Rhumatoid Arthritis, is extremely frail and bedbound. She has been in a care home for 3 years. This is taking a massive toll on my mum (only child) and I am taking the brunt of my mum’s struggling as well … --- ## [End of life scary](https://community.mariecurie.org.uk/t/end-of-life-scary/975)
**Author:** [@TBisme](https://community.mariecurie.org.uk/u/TBisme)\ **Replies:** 3\ **Last updated:** [13 November 2024 16:24 UTC](https://community.mariecurie.org.uk/t/end-of-life-scary/975 "2024-11-13T16:24:32Z")
My sister is feeling worse every day now and today she is at the worst I have seen her. She is coughing so badly and struggling to breathe. I am worried I am gonna lose her soon --- ## [Dealing with grief](https://community.mariecurie.org.uk/t/dealing-with-grief/976)
**Author:** [@Andrwred](https://community.mariecurie.org.uk/u/Andrwred)\ **Replies:** 1\ **Last updated:** [9 November 2024 02:59 UTC](https://community.mariecurie.org.uk/t/dealing-with-grief/976 "2024-11-09T02:59:12Z")
Hello, My name is Andrew. i lost my beautiful wife to breast cancer on August 6th 2024. She battled for 13 years. I knew the inevitable would eventually come as she was having palliative care but whilst in hospital she… --- ## [Terminal cancer diagnosis](https://community.mariecurie.org.uk/t/terminal-cancer-diagnosis/974)
**Author:** [@Flick](https://community.mariecurie.org.uk/u/Flick)\ **Replies:** 1\ **Last updated:** [6 November 2024 16:05 UTC](https://community.mariecurie.org.uk/t/terminal-cancer-diagnosis/974 "2024-11-06T16:05:22Z")
Hi just bee diagnosed with terminal cancer could be months or few years. My partner and children, although grown up, youngest 23, are very upset. Wondered if anyone could provide me with some ideas of how to get through … --- ## [In shock and scared](https://community.mariecurie.org.uk/t/in-shock-and-scared/857)
**Author:** [@User1231](https://community.mariecurie.org.uk/u/User1231)\ **Replies:** 1\ **Last updated:** [1 October 2024 14:42 UTC](https://community.mariecurie.org.uk/t/in-shock-and-scared/857 "2024-10-01T14:42:46Z")
I am 48 with idiopathic pulmonary fibrosis. I was just turned down for a lung transplant and now I’m scared and can’t stop crying. I need to be there for my daughter as her dad has decided to announce he has a new girlfr… --- ## [Terminal](https://community.mariecurie.org.uk/t/terminal/853)
**Author:** [@Kenn](https://community.mariecurie.org.uk/u/Kenn)\ **Replies:** 3\ **Last updated:** [6 September 2024 09:04 UTC](https://community.mariecurie.org.uk/t/terminal/853 "2024-09-06T09:04:05Z")
Diagnosed few weeks ago terminal , don’t know what to do , still in shock --- ## [My mom passed on last year February 2023.](https://community.mariecurie.org.uk/t/my-mom-passed-on-last-year-february-2023/848)
**Author:** [@Lindie](https://community.mariecurie.org.uk/u/Lindie)\ **Replies:** 1\ **Last updated:** [1 August 2024 13:58 UTC](https://community.mariecurie.org.uk/t/my-mom-passed-on-last-year-february-2023/848 "2024-08-01T13:58:06Z")
I cant cope, I miss her do much in such that I have developed stress and anxiety. --- ## [Hello!](https://community.mariecurie.org.uk/t/hello/843)
**Author:** [@Ned62](https://community.mariecurie.org.uk/u/Ned62)\ **Replies:** 5\ **Last updated:** [8 July 2024 13:28 UTC](https://community.mariecurie.org.uk/t/hello/843 "2024-07-08T13:28:55Z")
Hello, I am an older gay man whose husband (together 31 years) is dying from Ideopathic Pulmonary Fibrosis. I feel like our whole life has collapsed in on itself. His health is deteriorating rapidly before my eyes and my… --- ## [Q&A with Support Line Nurse](https://community.mariecurie.org.uk/t/q-a-with-support-line-nurse/826)
**Author:** [@Admin](https://community.mariecurie.org.uk/u/Admin)\ **Replies:** 29\ **Last updated:** [13 May 2024 11:17 UTC](https://community.mariecurie.org.uk/t/q-a-with-support-line-nurse/826 "2024-05-13T11:17:30Z")
Hello everyone, Sunday 12th May marks International Nurses Day. On Monday, 13th May between 11am-12pm our wonderful Specialist Palliative Care and Support Line Nurse, Jan will be here on our Online Community to share i… --- ## [Losing my mum](https://community.mariecurie.org.uk/t/losing-my-mum/820)
**Author:** [@Carron64](https://community.mariecurie.org.uk/u/Carron64)\ **Replies:** 1\ **Last updated:** [20 April 2024 16:07 UTC](https://community.mariecurie.org.uk/t/losing-my-mum/820 "2024-04-20T16:07:32Z")
Mum was diagnosed with stage 4 lung cancer 8 months ago, with the help of St.lukes hospice one response team and Marie curie nurses we wouldn’t of coped, we had them for 7 months up until the day mum passed 28th March 20… --- ## [Carer of loved one](https://community.mariecurie.org.uk/t/carer-of-loved-one/813)
**Author:** [@Exhausted](https://community.mariecurie.org.uk/u/Exhausted)\ **Replies:** 1\ **Last updated:** [23 March 2024 14:48 UTC](https://community.mariecurie.org.uk/t/carer-of-loved-one/813 "2024-03-23T14:48:52Z")
Hello, thank you for allowing me to join your community. My husband has Vascular Parkinsonism and Dementia. My husband is 85 yrs old and I have been caring for him for over 2 years now. I’ve arrived at the stage of being… --- ## [End of life](https://community.mariecurie.org.uk/t/end-of-life/812)
**Author:** [@Arl3n3](https://community.mariecurie.org.uk/u/Arl3n3)\ **Replies:** 1\ **Last updated:** [15 March 2024 09:51 UTC](https://community.mariecurie.org.uk/t/end-of-life/812 "2024-03-15T09:51:03Z")
My dad has dementia… I got a phone call saying he’s been in bed for a few days .. lying in a wet bed and he’s refusing to get out of bed to get a shower. He only gets one carer in the morning but I now think he’s on end … --- ## [End of life](https://community.mariecurie.org.uk/t/end-of-life/797)
**Author:** [@Carrew](https://community.mariecurie.org.uk/u/Carrew)\ **Replies:** 4\ **Last updated:** [15 February 2024 10:55 UTC](https://community.mariecurie.org.uk/t/end-of-life/797 "2024-02-15T10:55:44Z")
Hi everyone. Thanks for letting me join. I was just wanting to ask a question around end of life. My Mum had sarcoma of uterus, this was surgically removed. Sadly the cancer spread to her liver, lungs, spine and pelvis. … --- ## [Palliative Care at Home](https://community.mariecurie.org.uk/t/palliative-care-at-home/792)
**Author:** [@Carly51](https://community.mariecurie.org.uk/u/Carly51)\ **Replies:** 1\ **Last updated:** [17 January 2024 08:58 UTC](https://community.mariecurie.org.uk/t/palliative-care-at-home/792 "2024-01-17T08:58:55Z")
Hi, I’ve just joined this community. Thank you. My Mum is caring for my Dad who is at the end of life stage. He is at home and it’s at the stage where the nursing care needed is more than Mum can give. Mum heard about H… --- ## [Unusual Chronic Condition](https://community.mariecurie.org.uk/t/unusual-chronic-condition/790)
**Author:** [@SimonJacobs09](https://community.mariecurie.org.uk/u/SimonJacobs09)\ **Replies:** 4\ **Last updated:** [15 January 2024 16:12 UTC](https://community.mariecurie.org.uk/t/unusual-chronic-condition/790 "2024-01-15T16:12:58Z")
Hello, Feeling shy as a new member here. I’m in S.W. England and I suffer from an as yet undiagnosed condition, which stemmed from receiving electroconvulsive therapy for depression in 1993. It grips a certain muscle gro… --- ## [death of my husband](https://community.mariecurie.org.uk/t/death-of-my-husband/789)
**Author:** [@Lindaaitch](https://community.mariecurie.org.uk/u/Lindaaitch)\ **Replies:** 1\ **Last updated:** [30 December 2023 15:06 UTC](https://community.mariecurie.org.uk/t/death-of-my-husband/789 "2023-12-30T15:06:06Z")
my husband was diagnosed with terminal cancer in July and died in October at home where he wanted to be. he was in no pain throughout. but the last hour of his death was horrendous, he was in so much anguish but couldn’t… [Previous page](https://community.mariecurie.org.uk/c/welcome-and-community-guide-1/12.md) [Next page](https://community.mariecurie.org.uk/c/welcome-and-community-guide-1/12.md?page=2)